Always ex-KAI-ted to see him

In my previous post I told you briefly about my other baby Kai. He is the most beautiful boy and he has a special place in our family. Mind you I’m super in love with this boy, super duper!

Kai has NKH (non ketotic hyperglycinemia), it is extremely rare and only affects 1 child in every 60,000 born. Nkh is caused by a defect in the genetic code machinery, so in short children with this disorder cannot break down the amino acid glycine. As we were taught in our science class in school amino acids are natural components of our baby. So since glycine is not broken down it then accumulates in the body,and glycine is a super important molecule in the brain  where it has various functions such as transmitting signals from one cell to another (brain cell). So since there is a build up of glycine, it disrupts the function of the brain.

Kai is a very special boy, he is very handsome, cheeky (as he takes his socks all the time), he makes those very cute noises that makes you say aah how adorable he is, he has the most ridiculous cheeks they are so cute if only I can bite and squeeze them! (I’m sorry Kai, I can’t help it), he has the most beautiful smile ever, his smile is heart melting.

If you have a spare change, if you can donate just a small amount,  if you can fundraise,  every little thing helps. So what if you don’t know them, so what if you haven’t met them, we can help and we can make a difference. It’s not a waste of help, it goes somewhere and that money we raise and donate goes to funding a cure for nkh.

These beautiful children deserves a bright future, and their future is in the horizon. Please donate and help us raise money to find a cure, think how beautiful Kai is and think the life he deserves, nobody deserves nkh, nobody deserves to suffer, not Kai, not anybody else.

http://www.teammikaere.com
http://fundnkhcure.com

Loving our friends

Yesterday we met up with friends, it was lovely and although we wanted to stay some more it was nearing the kids witching hours,  so we thought we’ll save some stories for next time.

We love seeing our friends, how we miss our friend Larry and we just want to make sure everything is okay with him. He’s been our friend for a long long time but we’ve been super busy with our lives that we haven’t seen each other for nearly a year. So yesterday was a good day, the children enjoyed his company and we had lunch together and it felt like the old times.

Then after lunch we met up with our friends and their beautiful baby boy, his name is Kai and I tell you he is the most handsome boy you’ll ever meet, with those beautiful blue eyes. Ah! I can’t stop looking and loving him, how adorable he is and I got to cuddle him!(super proud!). 

Our children loves them so much especially their brother from another mommy. It’s amazing how fast they grow up, it’s amazing how beautiful they are. It was my first time properly meeting Elly and Sam but oh my goodness they are very kind, loving and warm people. I know I’ve been such a crazy stalker, you know stalking about their lives (because i fell in love with Kai) but I admire these guys so much, with all the things they went and going through, they have lots of positivity in their lives amidst all the challenges they are facing.

If you guys can help, spare a few dollars, or pounds or whatever is your currency, you know every little thing helps, please help us raise money to fund research for nkh (non ketotic hyperglycinemia), please help us find a cure for every child who has this disorder. These children are precious. These children are fighters. These children deserves a better future. These children deserves a cure.

Here is the link for their story so you guys can see how beautiful Kai is, trust me you’ll fall in love with him too:

http://www.teammikaere.com/