Always ex-KAI-ted to see him

In my previous post I told you briefly about my other baby Kai. He is the most beautiful boy and he has a special place in our family. Mind you I’m super in love with this boy, super duper!

Kai has NKH (non ketotic hyperglycinemia), it is extremely rare and only affects 1 child in every 60,000 born. Nkh is caused by a defect in the genetic code machinery, so in short children with this disorder cannot break down the amino acid glycine. As we were taught in our science class in school amino acids are natural components of our baby. So since glycine is not broken down it then accumulates in the body,and glycine is a super important molecule in the brain  where it has various functions such as transmitting signals from one cell to another (brain cell). So since there is a build up of glycine, it disrupts the function of the brain.

Kai is a very special boy, he is very handsome, cheeky (as he takes his socks all the time), he makes those very cute noises that makes you say aah how adorable he is, he has the most ridiculous cheeks they are so cute if only I can bite and squeeze them! (I’m sorry Kai, I can’t help it), he has the most beautiful smile ever, his smile is heart melting.

If you have a spare change, if you can donate just a small amount,  if you can fundraise,  every little thing helps. So what if you don’t know them, so what if you haven’t met them, we can help and we can make a difference. It’s not a waste of help, it goes somewhere and that money we raise and donate goes to funding a cure for nkh.

These beautiful children deserves a bright future, and their future is in the horizon. Please donate and help us raise money to find a cure, think how beautiful Kai is and think the life he deserves, nobody deserves nkh, nobody deserves to suffer, not Kai, not anybody else.

http://www.teammikaere.com
http://fundnkhcure.com

Hardest and most amazing job ever!Β 

I know I posted few weeks ago that I miss my work. I still do, but the work I’m doing now is way harder than dispensing medication and calculating dosages. The work I am doing now can make or break someone’s future. Sometimes I can’t get enough sleep, or no sleep at all. Sometimes I can only eat 2 meals or sometimes no meal at all. I’m not skint or anything it’s just that I am very busy, the tasks I have to do, the chores I have to finish, on top of that my bosses need me to translate something,  interpret things, respond to constant demands. 

In school I manage to finish my bachelor’s alright, then moved on to my master’s with exceptional colours, going on to work, I have constant invitations for interviews and job prospects, but this I don’t understand, I finished all those hurdles in my life and never caved in, but this job I am doing now I am nearly crawling at the end of the day. It is so difficult that on a Monday I am already wishing and praying for Friday to come quick.

The hardest job is rewarding too. I can work from home and never have to wear my fancy work suit, I can wear my shirt and jeans, teach somebody, encourage somebody and get on with life. There are days when I feel like I am a teacher, teach the children, read books,  paint some pictures and mark their progress. There are days when I am the chef, I fulfill the food requests, teach them to bake, what’s healthy and beneficial for our well being. There are days when I am the driver, take them to places, show them around, teach them about places, anything we see in our surroundings and how much we can help to improve it and what are our responsibilities too. There are days when I am the health care provider, when they are sick, I diagnose and treat, and be the doctor they want me to be, I calculate the dosages and dispense it lovingly to my patients and be the pharmacist they need me be, I then move on to caring for them, fulfilling their needs, checking them round the clock and be the super nurse I have to be. There are days when I am the cleaner, cleaning after their mess, picking up bits and pieces. And much more.

Being a mother doesn’t stop from there, from being someone else, we are someone else all the time, we can be whatever we want may it be a driver, a doctor, a maid, a cook etc. But at the end of the day we are the mother and our role is much complex than what is perceived. We are the jack of all trades, we multi task and we are very adaptable with our working environment, we can work in extremely chaotic, catastrophic and crazy work environment and yet we do it with pride. We can keep calm even under extreme pressure. We have longer patience even with the constant tormenting. We are in command, we are the captain of our own vessels and yet no matter how high we think of ourselves these teeny crazy weenies are our bosses and we take their lead. 

We work more than 100 hrs per week, nothing to minimal wages, Monday to Sunday,  on call every night and no holiday until the foreseeable future. Regardless of all the exhaustion and craziness in the umpteenth time this is the most fulfilling job ever, as we get to see the milestones,  the day to day progress and we get to raise individuals who will learn to share the learnings we teach them.

I can say proudly I am a SUPER Mommy (and I don’t care what others think of that! πŸ–’πŸ–’πŸ–’πŸ–’πŸ–’

All of us are SUPER  MOMS in our own special ways!😘😘😘😘

Write soon xx

My Daredevils

Crazy as it sounds, I’m raising Daredevils.

My son, at age 2 has been going down the highest slopes in the skate park with his balance bike. Balance bike! He’s meant to be learning to cycle with it not jumping off or doing some exhibitions in the slopes.  Oh my heart, the first time he did it I was so scared I thought I would be needing my own oxygen tank.

Then he met a teenager in the same skate park weeks later and that boy let him use his penny board.. my son didn’t hesitate, he prowled in an instant,without skipping a heartbeat.oh my boy! He’s growing up too fast, way fast!

Farm parks are great, not only they burn the kids energy, it feeds the imagination,it encourages to become a super boy, with a super power, with unlimited energy, to test the limits, break rules and screaming fits. My gosh! He is only three and loves exploring the older children’s play areas, such as the really high slides, the death slides, the fast slides, and the vertical drops. My heart skips a bit or two every time!

He doesn’t fear anything! He is not worried if he grazes his knees or gets some bruising. If he has to, he will engage and explore, that’s what I like about experiences rather than toys,  with experiences we create memories with toys we teach them, we enjoy then after awhile they’re forgotten, because they’re fed up of playing with them. Memories will be with them forever, we take pictures, we bond and we communicate. Somehow we have this motto these days,” less toys the better”.

Our children’s learning curve are amazing, our sweet face girl recently discovered she can do 360 degrees regardless of being on her tummy or back. She has this perseverance and urge to explore. Very very strong willed like her brother. With our son as long as it doesn’t involve anything with spooky things he is willing to try. In fact in one of our walks he mentioned to his dad that he is bored at home because he’s been missing the fun and he’s not learning anything new, I guess that’s true, but I kept him at home not because he deserves isolation but because they had chickenpox. I suppose there’s no reasoning with a three-nager huh. It’s either your fault or his way.

Our little sweet pea tried the swings she didn’t look amuse but she likes the idea of being in there, she cried a bit then forgot about it. She tried the baby zip wire too just a really slow one, a baby slide,  the soft play..she enjoyed every bits of it. I’m glad she did, she was slightly overwhelmed but of course she’s only 5 months and everything is a bit of a shock, lots of colours, shapes, textures and patterns to see and feel.

These memories we are creating will be remembered until they become adults, the toys will only be there as long as they need it then will be forgotten.

Cheer up, the sun is shining, it’s a brand new day..to love and explore

Write soon 😘😘😘😘😘

Moana and chicken pox

So I guess we achieved another milestone, currently we are experiencing the wrath of chicken pox with the help of Moana. Yes! Moana is helping me to settle the grumpy children. Oh lordy! Β Another day, another phase, another sleepless night.

How am I gonna survive this ordeal, is beyond me. But to take it one step at a time, crawling, rolling and walking really slowly..God I’m tired but what to do but to pick up myself and carry on. My patience is slowly wearing out, please I need to borrow more patience, I really do.

At least Moana is cheering my boy up and he’s singing away ‘you’re welcome’.

But oh boy, he’s tormenting me with mom this, mom that, mooooooooooooommmmm.. oh gosh! Little things mom, mom, mom I guess he was right when he said my real name is mom mom mom mom mom not AJ. Children, honestly you can’t and can live with them.

I can’t say I hate my life right now I sort of do and don’t but hey that’s life you gotta deal with it I suppose but the sleepless nights are getting on my nerves and I’m goddamn tired seriously I’m dying with a really slow death. But but buuuuuuut, at the end of the day when Lukie says mom you are awesome or sometimes he imitates the scene in Moana and he says mommy, mommy, mommy Β (whispering behind me, in my ear) you’re amaaaazzing.. makes me really laugh and wants to hug him even more and no matter how tired I am I just really forget it..it makes me really happy.

Oh this love and hate relationship makes my life beautiful and interesting.

Write soon 😘😘😘😘😘

Siiiiinnnggggg..

My boy has a passion with singing, when I say singing I meant whole day singing, insane singing, make up singing, grumpy singing and rage singing.

When he is bored he sings, when he teases any of us he sings!, when he’s in the car he sings and when he’s a guest at someone’s house he sings! My boy is a crazy, funny singer. I don’t mind though it makes him more special and he becomes even more creative by doing so.

Since I’ve been learning ukulele, to encourage him I got him a ukulele toy and he serenades us by singing and playing the ukulele, although his timings are never right I still love it when he gives his all whilst doing it. When I say his timings are never right he wakes us up with a loud song at 6 am..It’s sweet but A can be a freaking grumpy in the morning and 6 am is not the right time to wake her up. 6 am gone are the days when I can sleep until 10am lool.

Here is a video of my sweet pea singing postman pat. 😊

Proud of this little lad.

Write soon 😊

Wizards Brew

Today we were so bored so remembering I bookmarked a certain activity which I know my son will be so interested at. Note to self: Do not underestimate toddlers, I never thought having such an activity will be so much fun for a two year old, I thought it’s going to be so complex thinking he is too young for a simple acid base reaction activity. But then again I embrace defeat.

Children are so inquisitive and very smart, remember the saying “curiosity killed the cat”, they get so over the moon when they see something colourful, bright and fascinating. At this stage you don’t have to explain anything as observation from the chemical reactions speaks it all. I am linking the original source as well to acknowledge where we got the idea from .

Materials:

Baking Soda (Sodium Bicarbonate) (base)

Liquid watercolors or Food Colouring (we used food colouring)

Glitter (omitted that bit otherwise the little one will start eating it)

Washing up liquid

Vinegar (acid)

Glass Jar/ Mason Jar

Small Plastic Containers

Tray/ Plate

Instructions:

Fill the jar halfway with vinegar (acid)

AddΒ  few drops of one colour of food colouring and glitters if using some.

Squeeze a dash of dish soap

Add baking soda, my son says bombs away and stirs crazily and screams whenever it foams out.

*the difference between the other acid base activity I posted is that the dish soap in this activity makes it foam rather than fizzle.

To make it change colours we poured a bit of vinegar and added few drops of the preferred colour and repeated the steps again.

*In the latter part of the activity my son discovered that he can put loads of baking soda and stir like crazy making it overflow and he loved it.

Wizard’s Brew

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